About every nine minutes, another person is diagnosed with Parkinson's disease (PD). Many more people are experiencing symptoms but have not yet been diagnosed. Where does a person go to find out about movement disorder specialists or support groups or the latest research for a cure? Until now, where and if one found the answer to any of those questions depended a lot on where he lives or how technologically savvy she is.
This two-day conference, "Parkinson's Disease in Minnesota & Beyond: From Awareness to Action," is a collaborative effort. On Tuesday, February 16, we will focus on Minnesota:
Health care resources. Who diagnoses/treatsPD? Where are they located? etc.
Available therapies and treatments.
Support services. Who handles disability claims? Where is the nearest support group?
Research projects. What causes PD? Does a new medication work better or have fewer side effects?
Advocacy opportunities. Have any PD-related bills been introduced during this legislative session? What are some ways to educate others about PD?
Learn about the latest research happening at the national level;
Ask questions of the speakers in Washington, DC;
Find out which bills in Congress affect people touched by PD;
Understand the policy issues that affect the PD community, as identified by the Parkinson's Action Network;
Meet with representatives of Minnesota's Congressional delegation to increase their awareness of PD and support of policy issues;
"Parkinson's Disease in Minnesota & Beyond," Parkinson Association of Minnesota, 2010